Dancing with ALS and Life

dancingwithalsandlife.blogspot.com AI ART, “Every Rung Matters” These are a few things that happened while I was still able to walk and had some mobility in my arms and hands. I will sarcastically say that the “fun” part of having ALS is never knowing what to expect. Every day I wake up, I may have lost the ability to do something I was just able to do yesterday. Or, I can go for long periods of time without any changes in my functional status. Then when I start to come to terms with the loss of a particular function and give myself a little pep talk: “Stacy, you got this, girl.” Something else happens. I joke that having ALS sometimes feels like I’m being robbed  because in a blink of an eye I feel like something else is being stolen away from me. This becomes a bit of a dilemma because I’m constantly needing to readjust my thoughts and actions. My tendency has always been to be helpful when others are in need of assistance. However, I now need to constantly remind myself of the r...

dancingwithalsandlife.blogspot.com AI ART,  “Still Becoming” “Sometimes the most beautiful parts of us are born from places that once felt broken. Let your light shine through.” August 2026

dancingwithalsandlife.blogspot.com AI ART, “Godzilla Mayhem” The first time Godzilla came crashing into my home, he didn’t come from the ocean or a movie screen—he came through my front door and straight into my life, leaving a trail of destruction behind him. In the summer of 2025, Godzilla—with his flame-throwing atomic breath, long, powerful tail, and destructive force—arrived in my neighborhood. This gargantuan creature came into my house, breaking things and tearing my home to pieces. And when I say breaking things , I literally mean breaking things. He bent the legs on tables that my husband had to hammer and screw back into place. He knocked standing framed pictures, table lamps, Alexa speakers, makeup, and knickknacks onto the floor. He ripped off door and entryway trim and grabbed the legs of our dining room chairs, dragging them down the hallway and nearly gouging chunks out of the drywall. Moving at high speeds, he terrified the dogs, nearly stomping on their paws, while my ...

  dancingwithalsandlife.blogspot.com AI ART, Dreamy Vacation  “Close your eyes and let your spirit take the vacation your  body has been dreaming of.” July 2026

dancinwithalsandlife.blogspot.com AI ART, ‘THE MMA VICTORY’ Yesterday, I was minding my own business when, all of a sudden, out of nowhere, I found myself in a full-blown cat fight that resulted in gushing blood, scratches across my forehead, a swollen nose, sore ribs and chest, two black eyes, and—once again—a broken pair of glasses. You should see the other bitch. I doubt she’ll be coming around here anytime soon. I really wish I could say I was some badass female MMA fighter like Amanda Nunes. But in all honesty, the fight that left me bruised and bleeding wasn’t with another fighter. It was with the fiercest  opponent I've ever faced- ALS. For those of you who aren’t familiar with Amanda Nunes, she’s considered by many to be the greatest female MMA fighter of all time. Nicknamed “The Lioness,” she built her reputation through strength, grit, and a fearless fighting style. Now you’re probably wondering… How exactly does someone get into a MMA fight with themselves? Again, drum...