Dancing with ALS and Life

dancingwithalsandlife.blogspot.com AI ART, “The Storm”  There are some things in life I just don’t think about until I have to. Before ALS, a power outage was mostly an inconvenience. No lights. No TV. Maybe no Wi-Fi. We’d grab a flashlight, open the refrigerator as little as possible, and wait for the power to come back on. Simple, right? Well… not exactly when you’re living with ALS. Just recently, I experienced a power outage that lasted for several days. And let me tell you, when you’re living with ALS, losing electricity for that long is a whole different experience. People tell me I’m always thinking ahead. And that’s usually true… until the next thing pops its ugly head up and reminds me that maybe I’m not as prepared as I thought I was. And that got me thinking: What would happen if the power went out right now? Well, now I know. When the Power Goes Out, Everything Changes So much of what I use every day depends on electricity. My Permobil power wheelchair needs to be cha...

dancingwithalsandlife.blogspot.com AI ART, “Where Light Finds Its Way” “Even in the places where life feels fragile, there is still beauty blooming, light breaking through, and another reason to keep moving forward.”   September 2026

dancingwithalsandlife.blogspot.com AI ART, “The Chaos” Have you ever struggled to figure out what you wanted to make for dinner? Are you tired of whipping up the same humdrum recipes over and over again? I know those thoughts have entered the repertoire of my brain waves on numerous occasions throughout my married life with children. Recipe fatigue and boredom definitely hit our home from time to time. Recently, my husband and I decided to try something different. We purchased some fresh-baked haddock to make along with some yummy side dishes—garlic olive oil noodles and pan-seared fresh broccoli. It sounded delicious, and I was looking forward to enjoying the meal that my husband had so tenderly taken the time to prepare, cook, and plate for us. Everything was going perfectly. Until… GODZILLA STRUCK AGAIN! Who’s Godzilla? Godzilla is my Permobil motorized wheelchair, weighing in at more than 400 pounds—not including my own body weight! So here I am, rolling up to the table, c...