Dancing with ALS and Life

dancingwithalsandlife.blogspot.com AI ART, “The Chaos” Have you ever struggled to figure out what you wanted to make for dinner? Are you tired of whipping up the same humdrum recipes over and over again? I know those thoughts have entered the repertoire of my brain waves on numerous occasions throughout my married life with children. Recipe fatigue and boredom definitely hit our home from time to time. Recently, my husband and I decided to try something different. We purchased some fresh-baked haddock to make along with some yummy side dishes—garlic olive oil noodles and pan-seared fresh broccoli. It sounded delicious, and I was looking forward to enjoying the meal that my husband had so tenderly taken the time to prepare, cook, and plate for us. Everything was going perfectly. Until… GODZILLA STRUCK AGAIN! Who’s Godzilla? Godzilla is my Permobil motorized wheelchair, weighing in at more than 400 pounds—not including my own body weight! So here I am, rolling up to the table, c...

 dancingwithalsandlife.blogspot.com AI ART, “Seasons Change” “ As summer fades into fall, I’m reminded that life is about embracing each season we’re given—holding onto the beautiful moments, letting go when we must, and finding hope in whatever comes next.” September 2026

AI ART, “The Race Within” “A throwback before my wheelchair days” 🏃‍♀️ Run, Stacy, Run! Sometimes stubbornness keeps us going. Sometimes it gets in our way. I’m stubborn. I’ll admit it! Stubbornness has been one of my many lifelong patterns—and my personal companion throughout my ALS journey. It’s not all bad, though, because it keeps me from giving up too quickly when life feels like it’s spiraling out of control. Recently, my stubbornness came into play at my ALS clinic appointment. On a few occasions, my physical therapist had recommended that I try AFOs. What the heck are AFOs? Ankle-foot orthoses are lightweight carbon-fiber braces that slip into your shoes. They have plastic shin guards and Velcro straps around the calf and knee to secure them in place. They support the ankle, help prevent foot drop and dragging, and stabilize the knee from buckling. They can also assist with proper alignment while walking and help maintain mobility and stability. I just dismissed need...