About Me

Hi, I’m Stacy!

As a social worker for many years,  I was always finding ways to help patients and families navigate through the medical system whether if it was finding solutions to their current living environments to safely return home independently, finding appropriate services and resources when discharged, navigating through insurances, or dealing with the emotional aspect of changing health status and living arrangements.  Now, as patient myself, I am navigating through all of these aspects as well. I hope to draw upon all of my professional experience to provide you topics of interests.  My blog will include humor in dealing with the day to day life situations and emotions people generally wish not to share. I will also provide more serious educational posts. If there is a topic you would like information on please let me know. Even though I am unable to work due to my illness and disabilities, I still have a passion to help patients and families dance with their illness and life!

I currently reside in South Central Pennsylvania with my spouse, we will celebrate our 29th anniversary this year. I have two daughters and their significant others. Let’s not forget my two Australian Shepherds, a.k.a. wiggle butts that are brother and sister who share my days with me.

I personally would like to thank my support team, which includes my devoted spouse, family, friends and neighbors. My life would not be the same without you!


Enjoying my affogato before ALS arrived!

Popular posts from this blog

Dancing With ALS And Life!

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Before I start my blogging, it is important to me that my readers understand the origins of my blog title. When I was diagnosed with ALS, I just wanted to control everything that was happening to me. During an ALS clinic appointment, I received sound advice from Dr. Alair Altiero, LPC, PhD. She told me, “Stacy, ALS is not something you can control.  You need to learn how to dance with it.” Her advice has always stayed close to my heart because it is how we should be navigating through life with or without a terminal illness.  We have the tendency to want to control everything in our environment until one day, we realize we are not in control anymore. That is where faith and reality intersect. The other reason why this blog title fits so well for me is because my daughters and friends know that I enjoy dancing. I’m not good at it, but as long as I have some leg strength left, I will continue to move my body or feet to the sound of music.  In this blog, I plan to post every...
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Living In The Moment

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As a medical social worker for many years I would joke with my peers, aka Besties, that we need to write a book about some of the patient/family scenarios we dealt with because we would say “we can’t make this shit up.” I never imagined in my 50’s that I would consider writing a blog or book from the perspective of someone who was diagnosed with a terminal condition, called ALS. I’m not a writer, nor do I feel like I’m good at it. Honestly, I think this will never get published, and it would be more for my family and my closest friends to read if they are interested. Who knows, maybe it won’t be read by anyone. However, after thinking about the subject matter and sharing my idea with a few close family members and friends, their words of encouragement made it clear that I should move forward and give it a try. One thing I can guarantee you, my writing will be sincere, truthful, and from the heart. Since my diagnosis, there have been so many moments related to my disabilities that I fou...
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Dancing With Life Quote Of The Week

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 “Being strong isn’t about muscle, it’s about facing challenges head on” ~ LOU GEHRIG     I was diagnosed with ALS “Lou Gehrig’s disease” four years ago on July 15, 2021 at the age of 48.  It took me two and half years to get the news of this devastating diagnosis.  This date has a lot of significance in our lives therefore, I thought it only made sense for me to publicly open my blog on this particular day!  I personally want to t hank you for joining me on my blogging journey! Blessings ✝️,  Stacy  
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