Dancing with ALS and Life

dancingwithalsandlife.blogspot.com I try really hard to remain positive and to focus on all the good things that are in my life. And I try to live day by day and not think too far ahead in this shitty situation called dancing with ALS and life because I have been on this journey with symptoms starting six years ago. I learned early on constantly thinking about what I am losing or what will not be, takes me down a mesmerizing spiraling Alice in Wonderland rabbit hole, and I land in a very strange world that I don't recognize nor know where I fit in. When I do land in the strange world, I am determined to claw my way back up and out of the spiraling bunny hole.  I really hate when I feel like I'm wasting even one of my remaining days of life that God is giving me, because I'm just focusing on the negative shit! I find it is imperative to keep my mind busy to avoid further rabbit holes or strange lands.   However, I'm not always successful, and every once in a while, when ...

This blog was written when the world opened back up after the horrific Covid pandemic.  Since Covid why do restaurants no longer provide customers with spoons and straws? Prior to Covid, I would get a fork, knife, spoon and straws. Now when I go to a restaurant, I only get a fork and a knife and maybe a straw. Did utensils and straws die during the Covid pandemic?  For someone who is losing motor function and has poor hand dexterity, I learned early on eating most of my food, including salads, with a spoon was much easier.  A straw for all drinks is a must because glasses are too heavy for me to lift to my mouth to take a drink.  Yes, I’m even talking about cocktails and coffee. I’m sure you can image the looks I have gotten when I ask for a glass of wine with a straw or need a straw for my piping hot mug of coffee! When I use a spoon, the material it is made out of greatly matters.  The metal can’t be too heavy because I can’t lift it.  But it can’t be pla...