Dancing with ALS and Life

  dancingwithalsandlife.blogspot.com   “Laughter is an instant vacation” ~ Milton Berle

dancingwithalsandlife.blogspot.com  I began to take one step forward and then one step backward and I start moving forward again a.k.a. dancing with ALS because it is constantly robbing me of something. For example, I can no longer drive, take a shower on my own, bring a glass to my mouth to take a drink, dress myself and hug my loved ones.  The list becomes endless when living with ALS. These things are all happening while I am keenly alert and aware that the disease will progress . After time marched on and death didn’t come as soon as I thought, I had a choice to make.  Do I continue to remain in the dark spaces, or do I use my faith and decide to start living the life that I’ve been given even with all the nasty things that come along with it? The next fundamental question that presents itself is what is my purpose? Everyone needs to feel a sense of purpose and hope in their day.  It is vital part of our mental health.  Ironically, this was a conversation I ...

dancingwithalsandlife.blogspot.com      “One of the most beautiful qualities of true friendship is to understand and be understood“ ~Lucius Seneca 7/24

dancingwithalsandlife.blogspot.com    In the beginning of my health crisis, there was an outpouring of support and involvement. However, when the medical condition has a slow trajectory, over time, I find some of the support and involvement dwindles away. I know this is not intentional, and I also know people didn't forget about me, but life is busy and continues to march on. I can honestly say in the past, there were times I wanted to do something for someone, but I got caught up in the daily grind and the opportunity just slipped away. So, I can relate with absolutely no judgment. When I was in this phase though I learned very quickly who my dedicated family/friends are and who was going to waltz with me on this journey by providing her/his devotion and support. A longtime friend of mine one day gave me a very special gift of an elephant along with the story of female elephants. This gift had such a profound impact on me I immediately knew I wanted to share it with all the...

dancingwithalsandlife.blogspot.com    I am thankful for my family & friends who are dancing with me on this life journey! Who are you thankful for in your life? 8/10/25