This blog is about the day to day nitty-gritty things that come along with being diagnosed with ALS while trying to maintain grace, using a sense of humor and finding purpose.
dancingwithalsandlife.blogspot.com
Dancing With Life Quote Of The Week
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dancingwithalsandlife.blogspot.com
“Start where you are, use what you have, do what you can.” ~Arthur Ashe
dancingwithalsandlife.blogspot.com Before I start my blogging, it is important to me that my readers understand the origins of my blog title. When I was diagnosed with ALS, I just wanted to control everything that was happening to me. During an ALS clinic appointment, I received sound advice from Dr. Alair Altiero, PhD, LPC. She told me, “Stacy, ALS is not something you can control. You need to learn how to dance with it.” Her advice has always stayed close to my heart because it is how we should be navigating through life with or without a terminal illness. We have the tendency to want to control everything in our environment until one day, we realize we are not in control anymore. That is where faith and reality intersect. The other reason why this blog title fits so well for me is because my daughters and friends know that I enjoy dancing. I’m not good at it, but as long as I have some leg strength left, I will continue to move my body or feet to the sound of music....
dancingwithalsandlife.blogspot.com In the beginning of my health crisis, there was an outpouring of support and involvement. However, when the medical condition has a slow trajectory, over time, I find some of the support and involvement dwindles away. I know this is not intentional, and I also know people didn't forget about me, but life is busy and continues to march on. I can honestly say in the past, there were times I wanted to do something for someone, but I got caught up in the daily grind and the opportunity just slipped away. So, I can relate with absolutely no judgment. When I was in this phase though I learned very quickly who my dedicated family/friends are and who was going to waltz with me on this journey by providing her/his devotion and support. A longtime friend of mine one day gave me a very special gift of an elephant along with the story of female elephants. This gift had such a profound impact on me I immediately knew I wanted to share it with all the...
dancingwithalsandlife.blogspot.com Experiencing slow but continual motor function loss of my arms, hands and now in my legs, sucks!. Prior to living with ALS, I was very active with a busy life consisting of my career and family. For self care, I enjoyed hobbies to help me decompress from the world. In 2021, my busyness came to a screeching halt going from 100 miles an hour to nothing and gave me unbearable whiplash. I just felt so lost when everything was being stripped away from me, especially all my hobbies that required using my hands such as gardening, baking, crafts, crocheting, and reading. Focusing on the losses just threw me into a tailspin of deep depression and self isolation. I would spend countless hours scrolling through webpages on 101 hobbies to try, hoping and praying for hook, line and sinker that would fit my new normal. I even googled activities/hobbies for disabled individuals. Funny thing is, the website said disabled individuals should try gardening, puzzles...
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