This blog is about the day to day nitty-gritty things that come along with being diagnosed with ALS while trying to maintain grace, using a sense of humor and finding purpose.
Dancing With Life Quote Of The Week
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“Tell me, What is it you do with your one wild and precious life?”
Before I start my blogging, it is important to me that my readers understand the origins of my blog title. When I was diagnosed with ALS, I just wanted to control everything that was happening to me. During an ALS clinic appointment, I received sound advice from Dr. Alair Altiero, LPC, PhD. She told me, “Stacy, ALS is not something you can control. You need to learn how to dance with it.” Her advice has always stayed close to my heart because it is how we should be navigating through life with or without a terminal illness. We have the tendency to want to control everything in our environment until one day, we realize we are not in control anymore. That is where faith and reality intersect. The other reason why this blog title fits so well for me is because my daughters and friends know that I enjoy dancing. I’m not good at it, but as long as I have some leg strength left, I will continue to move my body or feet to the sound of music. In this blog, I plan to post every...
As a medical social worker for many years I would joke with my peers, aka Besties, that we need to write a book about some of the patient/family scenarios we dealt with because we would say “we can’t make this shit up.” I never imagined in my 50’s that I would consider writing a blog or book from the perspective of someone who was diagnosed with a terminal condition, called ALS. I’m not a writer, nor do I feel like I’m good at it. Honestly, I think this will never get published, and it would be more for my family and my closest friends to read if they are interested. Who knows, maybe it won’t be read by anyone. However, after thinking about the subject matter and sharing my idea with a few close family members and friends, their words of encouragement made it clear that I should move forward and give it a try. One thing I can guarantee you, my writing will be sincere, truthful, and from the heart. Since my diagnosis, there have been so many moments related to my disabilities that I fou...
“Being strong isn’t about muscle, it’s about facing challenges head on” ~ LOU GEHRIG I was diagnosed with ALS “Lou Gehrig’s disease” four years ago on July 15, 2021 at the age of 48. It took me two and half years to get the news of this devastating diagnosis. This date has a lot of significance in our lives therefore, I thought it only made sense for me to publicly open my blog on this particular day! I personally want to t hank you for joining me on my blogging journey! Blessings ✝️, Stacy
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